Showing posts with label hospice. Show all posts
Showing posts with label hospice. Show all posts

Thursday, March 5, 2009

"And I still love you..."

"Well the sun is surely sinking down
But the moon is slowly rising
So this old world must still be spinning round
And I still love you

So close your eyes
You can close your eyes, its all right
I dont know no love songs
And I cant sing the blues anymore
But I can sing this song
And you can sing this song
When Im gone

It wont be long before another day
We gonna have a good time
And no one's gonna take this time away
You can stay as long as you like..."

If you are thinking that these lyrics seem familiar, you are right. I wrote Tuesday's post with this song as the keynote, but felt compelled to revisit it today. Deep beneath the surface of my experience with this song as a James Taylor/Carly Simon fan and folk song/lullaby-singing mother, lies a time when this song became my own anthem of comfort and surrender.

It wasn't an easy time, but it was probably one of the most profoundly spiritual periods of my life...and one I rarely talk, or write, about.

It was a long season of confusion, hope, fear, prayer, and anguish. I lived each day in a space of ceaseless prayer, seeking wisdom and guidance for just one more step forward...without falling.  The angel messages from God were clear, but terrifying.  I was being asked to take steps I couldn't even imagine without breaking into a cold sweat.  Hope kept me on my knees praying for "another answer" until my knees were sore and bruised.  My only relief from the relentless "oh, please not this" moments came in the middle of the night when my family was asleep. In the dark hours between midnight and dawn, I could steal away for long self-numbing, exhausting runs, and work with a hospice organization in our city.  This agency coordinated volunteer relief for families with children and teens who were facing terminal illnesses and under palliative...or "end-of-life"...care and services.  Volunteers were assigned to patients who were in hospitals, hospice centers, or were receiving palliative care in their own homes.

Attending to the basic needs -- hand holding, placing a cool cloth on a fevered brow, reading, singing, talking, listening, cherishing -- of patients so that parents and family members could rest...or even just feel like they could leave the room for a moment...was a release for me.  For a few brief hours between midnight and dawn, I was free from the terror of my own journey through the valley, the wilderness, the desert of human hopes.  It was not that the work was physically demanding, but that it required complete and utter focus, and I welcomed it.  Focusing on the needs of others, was like a deeply needed rest from myself.  It was a divine gift allowing me to be free of retracing my past and agonizing over my future.

There was something so liberating about being able to be present in the moment and just...well,
be.  I was not there as a healthcare professional, I was not there as a Christian Science practitioner, pastoral counselor, or hospital chaplain .  I was serving as a non-denominational lay volunteer.  My only role was to support patients and their families.  It was as much about...as I would eventually learn... beginning the healing of my own grief.

This didn't mean that I wasn't praying, I was. I was always listening for God's life-affirming message concerning what was true about His child, listening for direction about how I could be of help, and listening for His constant reminders that He was present...right there in rooms where things often seemed terribly bleak and void of hope.   There were times when all I could do was silently bear witness to the evidence of His presence.  The face of God in the kindness of a nurse, the tenderness of a mother, the strength and courage of a child facing a journey that no one could provide a map for. But I was not there to give Christian Science treatment. I was not there to give advice or my opinion. I was there to simply give of my heart, my time, my silent certainty of God's presence. And I could give the gift of songs, songs I'd sing just because I loved them and I knew they brought comfort, joy, inspiration, and peace...to me, if nothing else.

"You Can Close Your Eyes" was just one of the songs that I sang to myself, and for those patients and their loved ones...devoted family members sleeping in hard plastic chairs, on floors, or in the bed next to a comatose child...night after night. 

I would start with the lullabies I had sung to my daughters earlier in the evening and then move on to hymns, folksongs, songs I had taught children in school,  love songs, gospels...and always to this song of comfort and love.

One night, it was a young man and his sleeping mother (click on this link to read a poem,
"Hospice - You are Not Alone" I wrote at the time, and posted a few years ago on this blog) that I poured my songs out for. And this song was a gift...a promise of rest and peace.  I thought I was singing it for that mother and her son...as well as those who were asleep in hospital beds throughout the city...but after about the tenth time through I realized that I was singing it to myself as well. 

We could all close our eyes.  We could rest, not
from the dripping of medication, the pain of loss, the sorrow of grief...but on the arm of our Father-Mother God.  We could rest in His presence, we could rest upon Her wise and generous preparation of our hearts and lives for the journey each one of us was facing.  And we could rest under Her wings of comfort and protection from the gathering storm of emotions that seemed to toss us to and fro, the glaring heat of self-doubt and regret that came in waves of "could I have done more?" and "what if I'd only..."

I have long loved this song as a child's lullaby, a prelude to sweet slumber.  But as I re-read Tuesday's post, I realized that I couldn't let Tuesday's message stand as the only testament to this song's spiritual impact on my life.  During those nights, this beautiful song was also a sweet, strong, tender companion to me, and a blessing offered to those I sang it for. I was singing for those who slept in darkened rooms where monitors beeped, nurses tiptoed in, mother's wept silent tears of heartache and surrender...and yes, I sang to myself, where in this sacred space and time I was learning the value of just being present, aware, gentle, and humane. I was learning that sometimes it is enough to simply sing a song and rest with another in, on, upon, and under a divine Parent's loving care. An ever-wakeful Parent who is always whispering, "and I still love you..."

"...So close your eyes
You can close your eyes, its all right
I dont know no love songs
And I cant sing the blues anymore
But I can sing this song
And you can sing this song
When I'm gone..."

I will never forget those families who taught me so much...i still love you...
Kate

Saturday, April 15, 2006

Hospice - You are not alone

"you are not
alone"
my heart cries out
from the
dark
emptiness of the night

"you are not alone"
in this place
where monitors
beep
and tubes drip
and your mother
breathes the shallow rest of
one who resists
the lure of sleep

she stirs
fitfully
in the hard plastic
chair near your
bed

she is there
and "you
are not alone"
she railed against the
sleep that overtook
her in the vulnerability of
exhaustion
she beat against the
slow
ache of her bones and
the burning behind her eyes
she cursed the
drowsy seductress that offered the
false pleasure of
dreams
where you are well
and laughing and
a sweet girl with
floating auburn hair
sits in the passenger seat of
your car waving
as the two of you
drive back to college
for the
last two weeks of
spring term

"you are not alone"
she wants
to send it...
this message.... her heart
screams it,
repeats it,
prays it...
like a buddhist's mantra...
into
your veins
rather than the mysterious
liquid that
drips from a transparent
plastic bag
near the head of your bed
with its
buttons and wires,
handrails and
table that rolls away
taking with it
the dinner you haven't touched
or juice your
throat can no longer swallow

"you are not alone"
you
say with eyes as intense and
penetrating as
the needles they no longer
need to poke into
your hip
now that this tube has become
a new appendage to your
body

you hunger to know
that she has
heard
your imploring

ventilator
stole your voice a
week ago
and you can no longer
lift a pen to write
the message you want her to
know... the
way you know the pattern...
the network...
of veins that line her
hand
veins you once traced
with index finger as
a child and now
trace with your eyes... and try to
memorize for later... 
as her hand clutches the
bedrail near your
shoulder 

"you are not alone"
you try to say to her....
even when I am not here
to remind you with
whatever body part
still functions and
can move
or blink
or emote
you will know
you will know
you
will know...

that there is a spirit
in me that rises
above what you
see...
and
watches while you fight sleep
and
forget to eat
and weep tears so hot and angry that
they burn your cheeks
when you think the drugs
have taken me out of the
range of hearing
your heart's
pain

"
you are not alone"
we both look up...
neither having spoken
both having heard
the Voice
the Voice that was not hers or yours
the Voice that was not
silent and yet the nurses did not
hear

"you are not alone" and
I AM here with you
I will not leave you
I will not leave you
I will not leave you

"you are not alone"
you never were
neither was she

"you are not alone"
I am here with you
I always have been
I always will be

"you are not alone"
rest in My presence
both of you

be My children
both of you

be free from pain
both of you
both of you
both of you....
are loved